Parenting Help
A DAY IN THE LIFE OF EPILEPSY
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Get the SAMI-3 MONITOR !!!!!!!!!!!!! It's an infra red camera. Picks up HD VIDEO IN COMPLETE DARKNESS!
It detects movement based on the settings you set.you can have it ring after 2 second movements up to a minute of movement- and it'll ring on a tablet that stays by your bed.
It saves the videos in 5 minute blocks. It can record the entire night or only videos with that included the alarm going off.
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The SAMI 3 MONITOR IS A LIFE SAVER. We were so grateful we found it. Expensive but worth every penny!!!
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Just curious as to why she’s not speaking yet? My daughter is also an epileptic.
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Has Aurora gone on make a wish
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I was recently
diagnosed with juvenile myclonic epilepsy
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I’m also epileptic and I got it when I was 6 months old. I’m now 16 about to be 17 and I also take Oxcarbazepine in pill form but when I was younger I also took it in the liquid form. Watching this video brings back so many memories of me growing up. You are such a great mother and I really respect you because I know my mom went through many nights and days where she was confused because she didn’t know what was going on. She is such a strong little girl and I wish y’all the best!
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my sister actually has epilepsy
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I love your family
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If you still are worrying about it my mom used to put a baby monitor in my room just in case I had one at night hahah when I was in 7th and 8th grade
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I know how your daughter is feeling. I have epilesy. I don't have Grand Mals. No meds have helped me. I have 3 types of them and the sideffects are worse. I sometimes take Hemp Gummies to help me sleep and not get epilesy at night but it's more active at night. Because of my epilesy I can't slow pills and sweat so much. I'm always tired. My family and friends have been there for me and helped me out.
I have had a EEG done. My doctor are afraid to do a MRI. I'm 15 years old and have them sence I was 5 but got dienosed sense 10. My doctor told my mom that the fainting spells are what kids do. I almost died because of my doctor said it's normal I was looking of the edge of a building when I lost condense and collapsed my mom saved me from falling 2 stories and I was 7. I would have died my mom did research for 3ish years and then we switched doctors and I figured out that I have epilesy. I have figured out it's not a burden on me but a blessing. I know how your daughter is going through right now but it gets better and easier to spot them and help her out.
My teachers at school are all certifed to help me and other kids with epilesy.
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Aurora is so cute!!
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She is so cute! OMG
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Its good to be proactive with her diet not just b/c of weight, but considering her illness. Diet alone is a big factor & going more natural will help reduce her seizures. Id def worry way more about whats in her food, pharmaceuticals, & other products than the CBD oil. Natural is def safer, meds will cause way worse issues, CBD oil wouldnt hurt her.
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My mom work use cbds oil.She take care of elderly with dementia
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My son is 2 and has epilepsy and was finally prescribed CBD (epidiolex) by his neurologist for his seizures. Hasn’t started yet but will start soon. Hoping all goes well! Your daughter is amazing. Y’all are such a great family!
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I love you channel so much you guys are so inspirational. I am gluten-free like Halie 3:21. I was wondering and I am so sorry if this is too personal for you guys to answer but does Halie have celiac disease or is she gluten intolerant. Please respond I love you guys so much. <3
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She has rhw cutest bed head hair going on. so cute
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She is just to cute!! Lol so precious ??? I am a new subscriber and I'm trying to catch up on your other videos.. but I got a question.. does Aurora call you and Jamie both mom? Or what does she call you both? Thanks for sharing guys your family us truly amazing ??
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I also have epilepsy, I use CBD oil (through a vape) and I was able to get off of all pharmaceuticals, as they were helping but the side effects were bad. I am allowed to go outside anytime I need to take a break and vape.
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My 4 yr. old ( 5 in Sept.) granddaughter, Laila, is non- verbal, epileptic. Her diagnosis is LGS and she had her on-set at 2 1/2 yrs old. LGS is in part, defined as many types of seizures and very hard to control seizures. She is on clobazam and epidiolex. The epidiolex is pharmaceutical script of CBD. We had her on Charlottes Web CBD before the epidiolex was prescribed and okayed through insurance. Charlottes Web was wonderful for her as she was seizure free for about 10 mths after starting it. However, the brain is tricky ,and as often happens with epilepsy, she became resistant and it stopped working for her. So we started looking for the next med. Sadly, this has become a common occurrence for Laila’s situation concerning meds.
I have had all the fears and frustrations that go along with this diagnosis. I also have the fear of her sleeping alone. She has a toddler bed next to my side of the bed, but often she just sleeps with my husband and I. I mention that to let you know, it may be common with these situations, and those of us living it out, completely understand.
I will be praying for Aurora and your family, as I pray for Laila. Blessings!!
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I've had epilepsy for 34yrs.and I even have them in my sleep
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I also have seizures ?that’s how I discovered your channel. I’m very fortunate to sense a seizure and alert my family when I’m having one. Awhile ago I had one in biology class and it was hard but I got tested when I had my first one when I was really young. They haven’t been able to figure out what’s wrong but going in for more tests soon?
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My dad has seizures and was thought to have epilepsy but it turns out it's not, it's been 3 years and they still dont know because the doctors were we live aren't the best in my opinion. My dad hasn't had a seizure in a while which I'm very happy about. I have also recently had an episode like a seizure that we are still unsure about, I've been going to the doctor and a nephrologist. I'm still undergoing alot of test but we suspect either kidney disease or hypertension, my anxiety also doesnt help but I'm doing fine and haven't had an episode for a while aswell. I wish the best for your family and Auroras journey through over coming epilepsy ❤
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