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Comments on: A DAY IN THE LIFE OF EPILEPSY https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/ 35Z624TwfbSB58MnfOLSmVOW7Hm Sat, 07 Dec 2019 21:17:19 +0000 hourly 1 https://wordpress.org/?v=4.9.26 By: Anika Baker https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11065 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11065 ]]> My dad has seizures and was thought to have epilepsy but it turns out it's not, it's been 3 years and they still dont know because the doctors were we live aren't the best in my opinion. My dad hasn't had a seizure in a while which I'm very happy about. I have also recently had an episode like a seizure that we are still unsure about, I've been going to the doctor and a nephrologist. I'm still undergoing alot of test but we suspect either kidney disease or hypertension, my anxiety also doesnt help but I'm doing fine and haven't had an episode for a while aswell. I wish the best for your family and Auroras journey through over coming epilepsy ❤

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By: Monika T https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11066 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11066 I also have seizures ?that’s how I discovered your channel. I’m very fortunate to sense a seizure and alert my family when I’m having one. Awhile ago I had one in biology class and it was hard but I got tested when I had my first one when I was really young. They haven’t been able to figure out what’s wrong but going in for more tests soon?

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By: newsboyz fan https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11067 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11067 I've had epilepsy for 34yrs.and I even have them in my sleep

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By: Regina Braun https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11068 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11068 My 4 yr. old ( 5 in Sept.) granddaughter, Laila, is non- verbal, epileptic. Her diagnosis is LGS and she had her on-set at 2 1/2 yrs old. LGS is in part, defined as many types of seizures and very hard to control seizures. She is on clobazam and epidiolex. The epidiolex is pharmaceutical script of CBD. We had her on Charlottes Web CBD before the epidiolex was prescribed and okayed through insurance. Charlottes Web was wonderful for her as she was seizure free for about 10 mths after starting it. However, the brain is tricky ,and as often happens with epilepsy, she became resistant and it stopped working for her. So we started looking for the next med. Sadly, this has become a common occurrence for Laila’s situation concerning meds.
I have had all the fears and frustrations that go along with this diagnosis. I also have the fear of her sleeping alone. She has a toddler bed next to my side of the bed, but often she just sleeps with my husband and I. I mention that to let you know, it may be common with these situations, and those of us living it out, completely understand.
I will be praying for Aurora and your family, as I pray for Laila. Blessings!!

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By: Abby Conroy https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11069 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11069 I also have epilepsy, I use CBD oil (through a vape) and I was able to get off of all pharmaceuticals, as they were helping but the side effects were bad. I am allowed to go outside anytime I need to take a break and vape.

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By: Victoria Thomascik https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11070 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11070 She is just to cute!! Lol so precious ??? I am a new subscriber and I'm trying to catch up on your other videos.. but I got a question.. does Aurora call you and Jamie both mom? Or what does she call you both? Thanks for sharing guys your family us truly amazing ??

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By: Lacey Tinch https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11071 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11071 She has rhw cutest bed head hair going on. so cute

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By: Brooklyn Christensen https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11072 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11072 I love you channel so much you guys are so inspirational. I am gluten-free like Halie 3:21. I was wondering and I am so sorry if this is too personal for you guys to answer but does Halie have celiac disease or is she gluten intolerant. Please respond I love you guys so much. <3

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By: Jared Cano https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11073 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11073 My son is 2 and has epilepsy and was finally prescribed CBD (epidiolex) by his neurologist for his seizures. Hasn’t started yet but will start soon. Hoping all goes well! Your daughter is amazing. Y’all are such a great family!

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By: Jaden Goodwin https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11074 Sat, 03 Aug 2019 14:34:50 +0000 https://parentingbookstore.com/a-day-in-the-life-of-epilepsy/#comment-11074 My mom work use cbds oil.She take care of elderly with dementia

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